PRIVACY MODE FEATURES OF GENETIC INFORMATION

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Abstract

The article discusses the principle of confidentiality, implemented during genomic research, reveals
the specifics of its content in connection with the importance of genetic information not only for the owner, but also for his blood relatives. The necessity of normative consolidation of guarantees of compliance with the principle under study, taking into account the provisions of international law, is proved. The problem of identifying and legal regulation of cases that allow the disclosure of genomic information in addition to the will of the citizen is indicated. The question is especially raised about the possibility of using the genetic data bank for scientific purposes without identifying their owners.

About the authors

E. S. Kryukova

Department of Civil and Business Law, Samara National Research University

Author for correspondence.
Email: grigorjewa.katerina@yandex.ru
Russian Federation

Iu. S. Povarov

Department of Civil and Business Law, Samara National Research University

Email: grigorjewa.katerina@yandex.ru
Russian Federation

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Copyright (c) 2020 Kryukova E.S., Povarov I.S.

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