GENETIC COUNSELING IN THE CONTEXT OF INFORMATIZATION

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Abstract

The article analyzes the provisions of Russian and foreign legislation on the protection of citizen’s health in terms of organizing and conducting medical genetic counseling through telemedicine, identifies the subject composition and specifics of this type of medical care, and suggests the development of a set of protective measures of a legal nature to protect the rights of patients and their relatives. The authors pay special attention to the quality of medical services provided using telemedicine technologies, and consider the main problems of bringing individuals to justice for improper performance of obligations.

About the authors

S. S. Borodin

Department of Civil and Business Law, Samara National Research University

Author for correspondence.
Email: grigorjewa.katerina@yandex.ru
Russian Federation

P. S. Kryukova

Department of Civil and Business Law, Samara National Research University

Email: grigorjewa.katerina@yandex.ru
Russian Federation

References

  1. Romanovsky G. B. Pravovoe regulirovanie meditsinskikh innovatsionnykh tekhnologiy v Rossiyskoy Federatsii: problemy i perspektivy [Legal regulation of innovative medical technologies in the Russian Federation: problems and prospects]. Rossiyskaya yustitsiya [Russian Justitia], 2016, no. 10, pp. 59–62. Available at: https://elibrary.ru/item.asp?id=27007920 [in Russian].
  2. Oshepkova O. M., Seminskii I. Zh. Sovremennye aspekty mediko-geneticheskogo konsul'tirovaniya [The modern aspects of genetic consultation]. Sibirskiy meditsinskiy zhurnal [Siberian Medical Journal], 2009, no. 4, pp. 5–9. Available at: https://elibrary.ru/item.asp?id=12591387 [in Russian].
  3. Maleina M. N. Pravovoe regulirovanie provedeniya geneticheskikh konsul'tatsiy kak vida meditsinskogo konsul'tirovaniya [Legal Regulation of Carrying out of Genetic Consulting as a Medical Consulting Type]. Meditsinskoe pravo [Medical Law], 2019, no. 2, pp. 3–9. Available at: https://elibrary.ru/item.asp?id=37347981 [in Russian].
  4. Tanimov O. V. Vliyanie tsifrovykh tekhnologiy na poyavlenie novykh strukturnykh elementov sistemy prava [The impact of digital technologies on the emergence of new structural elements of the legal system]. Rossiyskaya yustitsiya [Russian Justitia], 2019, no. 7, pp. 2–5. Available at: https://elibrary.ru/item.asp?id=38566277 [in Russian].
  5. Sokolenko N. N., Bagnyuk M. E., Bagnyuk D. V. Okazanie meditsinskoy pomoshchi s primeneniem telemeditsinskikh tekhnologiy: nekotorye problemy pravovogo regulirovaniya [Healthcare Delivery Using Telemedicine Technology: Some Legal Regulation Issues]. Meditsinskoe pravo [Medical Law], 2018, no. 4, pp. 14–17. Available at: https://elibrary.ru/item.asp?id=35234894 [in Russian].
  6. Blazhis А. K., Dyuk V. А. Telemeditsina [Telemedicine]. Saint Petersburg: SpetsLit, 2001, 143 p. Available at: https://speclit.su/image/catalog/5-299-00084-7/5-299-00084-7.pdf [in Russian].
  7. Fedyaev D. V. Fedyaeva V. K., Bashkova I. B., Prokop'eva T. V., Аrkhipova А. V. Uspeshnyy opyt vzaimodeystviya federal'nogo i regional'nogo tsentrov v ramkakh proekta «Telemeditsina» [Successful experience of interaction between the federal and regional centers within
  8. the framework of the Telemedicine project]. Nauchno-prakticheskaya
  9. revmatologiya [Rheumatology Science and Practice], 2016, vol. 54, no. 1, p. Available at: https://elibrary.ru/item.asp?id=27202910 [in Russian].
  10. Bajsultanov I. Kh., Isaev T. M., Isaeva E. L., Аmadaev А. А. Organizatsionno-ekonomicheskiy mekhanizm funktsionirovaniya telemeditsiny [Organizational and economic mechanism of telemedicine functioning]. Molodoy uchenyy, 2016, no. 5, pp. 288–292. Available at:
  11. https://elibrary.ru/item.asp?id=[in Russian].
  12. Grigsby J., Sanders J. H. Telemedicine: Where it is and where it’s going. Annals of Internal Medicine, 1998; 129 (2): 123–7. DOI: http://doi.org/10.7326/0003-4819-129-2-199807150-00012.
  13. Vladzimirsky А. V. Telemeditsina: Curatio Sine Tempora et Distantia [Telemedicine: Curatio Sine Tempora et Distantia [Telemedicine: Curatio Sine Tempora et Distantia]. Moscow, 2016, 663 p. Available at: http://noocivil.esrae.ru/pdf/2016/3/1528.pdf [in Russian].
  14. Starchikov M. Yu. Pravovaya reglamentatsiya okazaniya meditsinskoy pomoshchi (uslug) s primeneniem telemeditsinskikh tekhnologiy: problemnye voprosy i puti ikh razresheniya [Legal regulation of the provision of medical care (services) using telemedicine technologies:
  15. problematic issues and ways to resolve them]. Prepared for the «ConsultantPlus» system, [in Russian].
  16. Tikhomirov А. V. Problemy pravovoy kvalifikatsii vreda zdorov'yu pri okazanii meditsinskikh uslug [Problems of legal qualifi cation of harm to health in the provision of medical services]. Meditsinskaya ekspertiza
  17. i pravo [Medical Examination and Law], 2009, no. 2, pp. 15–Available at: https://www.forens-med.ru/book.php?id=3540 [in Russian].
  18. Vinokurova M. А. Telemeditsina: balans bezopasnosti i effektivnosti? [Telemedicine: the balance between safety and eff ectiveness?]. Vestnik
  19. Nizhegorodskogo universiteta im. N.I. Lobachevskogo [Vestnik of Lobachevsky University of Nizhny Novgorod], 2018, no. 4, pp. 89–Available at: https://cyberleninka.ru/article/n/telemeditsina-balans-bezopasnosti-i-effektivnosti [in Russian].
  20. Blokhin P. D. Vrachebnaya tayna pri zhizni i posle smerti (kommentariy na polyakh Opredeleniya Konstitutsionnogo Suda RF) [Medical Privacy during the Lifetime and after Death (a Commentary on the Ruling of the Constitutional Court of the Russian Federation)]. Meditsinskoe pravo [Medical Law], 2018, no. 5, pp. 33–43. Available at: https://elibrary.ru/item.asp?id=35592896 [in Russian].
  21. Smirnova K. M. Problema informatsionnoy bezopasnosti v kontekste ispol'zovaniya «interneta veshchey» v meditsine [The Information Security Issue in View of the Use of the Internet of Things in Medicine].
  22. Meditsinskoe pravo [Medical Law], 2019, no. 1, pp. 31–Available at: https://elibrary.ru/item.asp?id=36694207 [in Russian].
  23. Zhuravlev M. S. Pravovoe obespechenie elektronnogo dokumentooborota v telemeditsine [Legal support of electronic document management in telemedicine]. Informatsionnoe pravo [Informational Law], 2017, no. 4, pp. 10–15. Available at: https://wiselawyer.ru/poleznoe/99707-pravovoe-obespechenie-elektronnogo-dokumentooborota-telemedicine [in Russian].

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Copyright (c) 2020 Borodin S.S., Kryukova P.S.

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